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WHO 'Giorgi ...
Giorgio is a beautiful girl just 15 months. E 'born with a rare cellular anomaly that was diagnosed before birth. It was initially called "Berdon's Syndrome."
When she was born in Rome, far from home, he began his battle. Often she was in the hospital for visits and inspections, and everything seemed to be fine.
But another disease has attacked the "Hirschsprung disease." That 's what led her to Parma. With the first operation were removed more than 53 cm of intestine. But now the little girl started again to fight against a total degeneration of the intestine, led to think of all confirm the first diagnosis: Berdon syndrome.
Other scans, biopsies and other, more results: it is not Berdon, its cellular anomaly is new and unclassifiable!
Giorgia's case is unique in Europe (around the world? You do not know, maybe!). His gut is not working as it should, is as "crazy." Two operations in two months. For four months does not drink or eat (sometimes up to 5 or 10 cc of clear fluids - water and chamomile -). E 'fed only by parenteral nutrition, to the detriment of other organs (stomach, liver, bladder). Since July is hospitalized in the pediatric surgery department of Parma, pending a transfer to a hospital in Paris (the only center specializing in transplants in Europe), where it is hoped that a multi-visceral transplant can gift her a new life. Giorgia
in his play continues to give us smiles and funny faces, crying only when the doctors come to visit ... like she could not! The nurses are his sitters, the room the only home get to know. Elisa Salvatore Mom and Dad try to make her walk along the corridors (but now only in the room because the flu), numerous pipes that hold it in life and holding firmly her hand, because that is where he is learning to walk .
France is the HOPE of Georgia. Will again be subjected to lengthy examinations, exhausting and painful. But, if even Paris can help you, the parents are ready for another journey of hope, in Miami in America.
Unfortunately, the "voyages of hope" are very expensive.
These costs are incurred by our health only in part, the rest is paid by the parents. We want to help! Do not leave them alone. Possiamo farlo con la nostra sensibilità, il nostro affetto e con un piccolo contributo. Sosteniamo la famiglia.
Per noi è un gesto di solidarietà e partecipazione, per la piccola Giorgia è la sopravvivenza.
"ANCH'IO AIUTO GIORGIA"!
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WHO IS GIORGIA.
Giorgia is a beautiful baby girl just 15 months old. She was born suffering from a rare cellular anomaly which had been diagnosed before her birth. At the beginning it was detected as "Berdon's syndrome"
When she was born, in Rome, far away from her home, her battle has started. Often she was in that hospital for routine checks and everything seemed to be fine.
But another illness has attacked her: the "Hirschsprung disease". Was this one that brought her at Parma. During the first operation, she got removed more than 50 cm of intestine. But soon after, the little girl started again to fight against a full degeneration of her intestine; everything leaded the medical staff to confirm the first diagnosis: Berdon syndrome.
Other exams, checks, biopsy and, again, other results: It's not Berdon; her cellular anomaly is new and unclassifiable!
Giorgia's case is the only one all over the Europe (perhaps all over the world). Her intestine does not work as it should do, it seems like the intestine "got crazy". Two operations in just two months. Since 4 months she can not eat and drinkat all (sometime just 5-10 cc of clear liquids - water and chamomile). She is fed only by parenteral nutrition, which is also damaging other organs such stomach, lever and bladder. Since July, she is hospitalized in the Paediatrics Surgery Division of Parma Hospital, waiting for being transferred to another hospital in Paris (the only specialized transplants centre in Europe), where we hope that a multiple visceral transplants can gift her a new life.
Giorgia, despite to her drama, keeps going to give us smiles and funny faces; she cries only when doctors come to visit her.how she couldn't! The nurses are her baby sitters, the hospital room is the only home she knows. Mummy Elisa and Daddy Salvatore try to make her walk along the hospital hallway (now only in the room because of the flu danger), taking care about the numerous pipes that keep her alive and holding firmly her hand, because she is there learning to walk.
The France is Giorgia's HOPE. There she will be subjected again to long, exhausting and painful exams. But, if even Paris will not be able to help her, Giorgia's parents are ready for another hope trip, at Miami in the USA.
Unfortunately, the "hope trips" are very expensive.
These expenses are just partially covered by the Public Health Department; the remaining costs are fully in charge of the family. We want to help them. Don't live them alone. We can do it with our feeling, our love and a small financial contribution. Let's support Giorgia's family. For us is just a sign of solidarity and participation, But for little Giorgia is the only chance to survive.